Treatment decisions have been difficult and rapid. We flew to Minneapolis for treatment only 5 days after diagnosis. After 5 very stressful months of treatment and living chaos, we are finally feeling settled in a nice home with a life that is calmer and more "normal". Having only one home base is the final stabilizing choice, until we know better what my prognosis will be.
I am beginning to feel very hopeful. Tarceva treatment, at the reduced dosage (100mg) is very tolerable. I HAVE HAD 5 VERY GOOD DAYS that feel energized and mentally acute, like how life used to feel! I've even started planning projects at home. This is the quality of life I am seeking! We are early in the process but if I can maintain current quality of life on Tarceva, I will have a good run. I joined an online forum called "Inspire" where there are lots of people with the same diagnosis and treatment options, many of whom take Tarceva. There are people on the forum who have been on Tarceva for 2, 3, 5, even 8 years. I am feeling almost like I know I have years ahead of me ... wow, what a different feeling.
To my Oregon Friends - yes I was in Oregon last week for 5 days. I apologize for not telling anyone. The work was very intense and I was sick for the first 3 days. There just wasn't any time, this time. Next time. Ok?