Colleen McCann
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10/22/2014

 
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Thank You everyone for the thoughts and prayers.
I have learned that I do not qualify for the Mayo Immunotherapy Clinical study :-( 
I am waiting to see if I will qualify for other trials, which use targeted chemo. I should know by next week and I will update again at that time. I am not feeling grief or panic over my results. All of life my "luck" has been fantastic...I got the guy, picked for the team, got the job, business success, kids successful, great friends...on and on. Lately it seems cosmic balancing is at work...aka lots of bad luck. Still I feel fortunate for the wonderful life I've lived and continue to live each day.  Even as my cancer progresses (I can see change in my eye) my quality of life remains excellent. More than anything I long for calm, quiet space where I can read books and avoid my current "schedule" of responsibilities. Perhaps the safety, certainty and care that comes with hospice is exactly what I need.

Calm hasn't been working lately. Last Friday I raced home from a cabin retreat to meet Brigit in the ER. She had another collapsed lung, was hospitalized, surgery Monday, with hopes she will be released from the hospital on Friday. She is doing well but chest tubes and lung surgery is painful stuff. Routine these days is lots of time back on the 7th floor of University of Minnesota hospital.

Thoughts and Prayers

10/2/2014

 
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For those of you who are sending thoughts and prayers my way, I can use your help NOW. Remember what we learned in book club...Heathen prayers are twice as valuable!

Friday I head back to Mayo Clinic for a liver biopsy. If my cancer expresses PDL-1, I will be eligible for Immune Therapy trials. Immune Therapy drugs (PD-1 or PD-L1) could extend my life by months, maybe even a year. They will also test for the T790M mutation, which will qualify me for other chemo trials that are showing success in slowing cancer. If the cancer spreads to my brain I will not qualify for these trials.
This is a race against time, without treatment I likely will not see 2015.  Hmmmm... who would think I'd be dying to see one more Minnesota winter :-)

What are we praying for?
  *PD-L1 Markers in my cancer
  *T790M Mutation in my cancer
  *Getting randomized to the immune therapy drug Yervoy

Thanks to friends Amanda and Mary for helping me locate a cannabis oil that is low in THC and non-sedating. You don't know each other but one of you found the contact and the other encouraged me toward pursuing it. Cannabis oil is another Immune Therapy drug that can slow cancer. You should both know that I had given up on this option, but your calls and emails kick-started my efforts. I will be receiving this new product tomorrow, it gives me a ray of hope. THANKS!

    Colleen McCann

    I have a good life with wonderful friends and family. This blog is meant to keep me in touch with everyone.

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