Good news is that the new drug has reduced my pain significantly. If you have had pleurisy, then you know that lungs have painful nerves...eeeyouch. My eyes have also stopped paining me and disturbance to vision is reduced. My hair and skin are returning to normal (seems silly but HUGE benefit). No CT scans yet, but the assumption is that CO-1686 is working! Yay!
Downside, substantial. My quality of life has been quite low due to side effects. Today is my first "good" day, but with a low note. The culprit driving unrelenting nausea and diarrhea seems to have been the diabetes drug Metformin. Experimental drugs float dreams, but they aren't always dreamy, this one causes hyperglycemia. From my high glucose numbers I might be advised to resume the Metformin. Hello nausea drugs and slushy stomach. Argh!
CARPE DIEM. Dress my lithe bod up in a leather mini skirt and twirl while my stomach is in the mood. Dancing anyone?