I will need a biopsy to confirm that I indeed have the T790M mutation.
First round trials are closed. Opening in October are next stage trials in New York, Boston and Atlanta.
I am now trying to lean more and research travel and lodging cost in each city.
Overall my quality of life is good. With progression I now have pain daily (intermittent, not too bad) and have less energy. I am reading more, I will repost the book club invitation in case you would like to read with me. We have a Facebook group set up for book club exchanges.